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State Intellectual and Developmental Disability Agencies' Service Trends

Data Note 51

By Jean E. Winsor

Source: The National Survey of State Intellectual and Developmental Disabilities Day and Employment Services (Institute for Community Inclusion, State Data Project).

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Since Fiscal Year 1988, the Institute for Community Inclusion has administered the National Survey of State Intellectual and Developmental Disability Agencies’ (IDD Agencies) Day and Employment Services. The work is funded by the Administration on Developmental Disabilities and is designed to describe the nature of day and employment services for individuals with intellectual and developmental disabilities.

In FY2013, an estimated 607,959 individuals received day or employment supports from state IDD program agencies. This number grew from 457,405 in FY1999. The estimated number of individuals in integrated employment services increased from 108,680 in FY1999 to 113,271 in FY2013. State investment continues to emphasize facility-based and non-work services, rather than integrated employment services. Figure 1 shows the trends in the percentage of people served in integrated employment and facility-based and non-work settings between FY2004 and FY2013.

Major findings include:

  • National estimates suggest that there has been modest growth in the number of individuals in integrated employment since 1988.
  • The estimated percentage of individuals participating in integrated employment services was 18.6% in FY2013.
  • Growth in supported employment primarily occurred between the mid-1980s and mid-1990s, and there has been a decline in the number of people with IDD in integrated employment since 2001.
  • Growth in community-based non-work services has continued for states that report offering this service.
  • There is large variation across states in participation in integrated employment (Table 1).

Figure 1. Estimated IDD Agency Service Distribution by Year

Estimated IDD Agency Service Distribution by Year

 

2004

2007

2008

2009

2010

2011

2012

2013

Percent Integrated Employment* 

20.7%

20.4%

20.6%

19.8%

19.1%

19.2%

18.4%

18.6%

All Facility-based and Non-work Services 

79.3%

79.6%

79.4%

80.2%

80.9%

80.8%

81.6%

81.4%

*Percents displayed represent estimates for the number of people served in integrated employment nationally including all 50 states and Washington, DC

Table 1. Participation in Day and Employment Services in FY2013

State

Total Served

Percent Integrated Employment

Percent Community Based Non-work

Percent Facility Based Work

Percent Facility Based Non-work

AK

 1,608

26%

0%

0%

98%

AL

 4,893

4%

0%

2%

94%

AR

-1

-1

-1

-1

-1

AZ

 7,471

21%

0%

12%

67%

CA

 79,833

12%

75%

13%

0%

CO

 7,706

27%

74%

0%

54%

CT

 9,764

49%

51%

4%

0%

DC

 1,253

12%

-1%

0%

87%

DE

 1,923

29%

13%

24%

31%

FL

 16,653

14%

0%

0%

0%

GA

 19,854

13%

26%

0%

60%

HI

 2,180

2%

90%

1%

56%

IA

 12,998

17%

0%

25%

58%

ID

-1

-1

-1

-1

-1

IL

 24,178

6%

0%

1%

93%

IN

 13,049

15%

71%

34%

43%

KS

 6,200

13%

53%

50%

58%

KY

 7,072

18%

96%

0%

13%

LA

 5,346

31%

0%

29%

39%

MA

 15,523

29%

17%

20%

55%

MD

 12,663

40%

0%

0%

60%

ME

 3,515

28%

-1

-1

-1

MI

 17,746

23%

36%

25%

28%

MN

 22,306

13%

25%

53%

8%

MO

 5,618

12%

6%

0%

89%

MS

-1

-1

-1

-1

-1

MT

 1,854

12%

0%

0%

88%

NC

 13,625

22%

28%

19%

33%

ND

-1

-1

-1

-1

-1

NE

-1

-1

-1

-1

-1

NH

 3,603

38%

65%

0%

0%

NJ

 11,910

11%

0%

22%

63%

NM

 3,332

33%

75%

0%

50%

NV

 2,372

18%

1%

44%

36%

NY

 56,873

13%

0%

14%

82%

OH

 34,689

21%

0%

54%

41%

OK

 4,050

62%

28%

55%

0%

OR

 10,919

33%

32%

24%

25%

PA

 28,133

18%

44%

33%

33%

RI

 3,475

33%

58%

14%

77%

SC

 7,425

29%

11%

38%

42%

SD

 2,490

18%

31%

67%

31%

TN

 7,026

19%

92%

0%

53%

TX

 46,043

8%

0%

1%

54%

UT

 3,131

23%

81%

0%

0%

VA

 14,127

24%

4%

4%

68%

VT

 2,905

38%

63%

0%

0%

WA

 8,280

86%

12%

8%

>1%

WI

 15,367

21%

13%

44%

50%

WV

 2,134

41%

100%

1%

58%

WY

 1,428

18%

0%

9%

72%

Suggested Citation

Winsor, J. E. (2015). State intellectual disability and developmental disabilities agencies’ service trends. DataNote Series, Data Note 51. Boston, MA: University of Massachusetts Boston, Institute for Community Inclusion.

Acknowledgments

This is a publication of StateData.info, funded in part by the Administration on Developmental Disabilities, U.S. Department of Health and Human Services (#90DN0216).

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